Updated on 3/8/24
Be sure to check out the bottom of this page. I list the treatments that helped me earlier on, but I no longer need to use.
- Eating more protein and fat. I tend to fade in energy between meals. I also get ravenous an hour after eating carb-heavy meals. Eating more protein and fat with each meal has been helpful to feel more steady energy-wise.
- Zinc picolinate, magnesium glycinate, ashwagandha, inositol, lithium orotate, and 5-htp (mental health and physical anxiety manifestations).
- Xiidra eye drops, Tyrvaya, warm compresses (twice daily), IPL, Allegro or Celluvisc drops, Ocusoft foaming lid wash, blinking eye exercises, Genteal gel drops at night (dry eyes)
- Electrolyte drink of some kind after sweaty exercise sessions or when feel dehydrated. Some current favorites are Hi-Lyte mixed with diluted juice, Drip Drop, or Liquid IV.
- Flonase- Occasional stints as needed for seasonal allergies
- Fermented applesauce or probiotics for gut flora
- Neil Med Sinus Rinse (allergies and sinus infections)
- Vitamin D (current deficiency)
- Slow release iron (past deficiency)
- Increased water intake
- Working within my energy envelope (pacing)
- Healthy diet (a lot of whole foods)
- Massage therapy
- Increased time outdoors
- Meditation
- Deep breathing
- Healthy sleep habits
- Challenge myself cognitively and learn new things (helps with brain fog)
- Cognitive behavioral strategies/avoiding sick behaviors (“mind tricks”)
- Exercise- Currently weight lifting, PT exercises, variety of cardio, and running
- Being as active and mobile as possible during non-exercise time
- Natural movement and barefoot shoes
Here are some things that I used to do that were helpful at a time, but I no longer do because I don’t have to or it lost its effectiveness, etc.
- Saltstick Vitassium
- Mestinon (aka Pyridostigmine Bromide)- helped with energy, strength, and “gassed” feeling in muscles
- Vestibular ocular reflex exercise/physical therapy for dizziness
- Physical therapy for addressing muscular imbalances and minor injuries
- Ginseng for energy
- Propranolol- helpful bridge to exercise
- Modified Levine Protocol exercise program
- P.volve (exercise method)
Disclaimer: I am not a medical professional. Statements on this site are not meant to be taken as medical advice. These statements reflect my personal experiences having mild-ish post-viral POTS and ME. Due to the wide spectrum of these diseases, comorbidities, and everyone being different, your experiences may be very different than mine.
Note: If you post a comment, this site does NOT have a feature to notify you of responses to your comment. I have not found a good solution for that yet. However, I usually respond to every comment in a timely manner, so be sure to check back.